Peer Haritz: Gila, Identification by Appearance & Perpetuation of Stigma (19/10)

Lecturer Pak Koentjoro: "Mental health is harmony!" (15/10)

Interview with Pak Koentjoro on mental health community development(15/10)

Perceptions towards ODS & Integration (How) (9/10)

Perceptions towards ODS & Integration (How)

What is it shaped by?

- exposure to media

TV (electronic)

Print (newspaper and magazines)

- family's reactions 

According to Pak Harry

- some call them "gila"

- some see them as "lucu" - a laughing joke

- others make fun of them and see them as source of amusement

Stigma exists among neighbours and friends.

How can we achieve integration?

Systemic (Mbak Aspi)

Devotion of more Economic resources

As an individual, shift in mindset

- we can learn more

- we need to stop seeing them as not normal - and other-ing them

- it's true that they are sick (illness)

- we can and must see their assets and appreciate their ability to do small tasks

For caregivers

- help them care for ODS

- enable them to educate others - share their story with others

- support others

Caregiver felt alone and not understood (9/10)

Mas Agus and Cousin (Caregiver and ODS) (9/10)

Mas Agus has a Cousin diagnosed with schizophrenia

First time when he knew that his Cousin got diagnosed

- he felt alone

- no one understand 

- inferior - didn't want to invite friends back home

- "why ODS in my home?" - questions why does it have to happen in his home?

- over time, he said his family comes to realise that he is STILL family

- even though he is different from "orang Biasa"

How do others react?

- "takut"

- "Sakit"

Caregiver's Journey: Relapses are common, Managing Reactions of neighbours (9/10)

Pak Harry and Son (Caregiver and ODS) (9/10)

Pak Yustinus Harry Nugroho and his Son who was diagnosed with schizophrenia

He started his sharing by showcasing the behaviour of his son, smoking non-stop, looking aimlessly and talking to self.

Reactions to diagnosis

When he was diagnosed, he will keep asking "why can't I go university?" He will punch himself.

#Evidence of self-blame via self-punishment.

During a relapse: 

He talked to himself.

Prayed to "nobody"

Chain-smoked

His eyes were empty.

He will walk on his own - "kosong"

#Relapses are common.

How he felt

I felt really sad (sedih sekali)

Why must it be my Son?

How he react?

@Neighbours

- not defensive

- patient, explain to them, help them understand

(I received encouragement from the Neighbours in my Neighbourhood, many well wishes that he can become better)

Harus optimise. Harus positive!

What helped Pak Harry

Attended a training for caregiver by RSJ Grahsia 

- he received social support

- realised that he is not alone

- became convinced that there is hope for recovery for ODS

He now runs the support group independently.

He wished for:

- more community support

- more understanding and empathy towards PMI

Recorded post-seminar on "Undersranding Schizophrenia" Organised by Lembaga Mahasiswa Psikologi on 9 October 2015